Category: Cystic Fibrosis

Cystic fibrosis was a mystery disease until the mid 1940’s. Then it was identified with the inability to clear mucus from the lungs and air passages. Some scientists and researchers believe it developed because of preventive measures taken for cholera. If a child was diagnosed with cystic fibrosis in the 40’s they rarely survived childhood. In the 1970’s the survival rate of a child with cystic fibrosis was sixteen! Treatment was supportive in nature and did little more than improve their quality of life. Today there is still no known cure for cystic fibrosis but there are treatments and medications available that prolong life and give the patient a better quality of life. In 2006 the survival age of cystic fibrosis patients rose to the late 30’s.

Children With Cystic Fibrosis 0

Children With Cystic Fibrosis

Children With Cystic Fibrosis Parents who have children have tough times and it can be heartbreaking. Parents often feel guilt because they blame themselves because they passed the mutant gene on to their child...
When Should You See A Doctor? 0

When Should You See A Doctor?

When Should You See A Doctor. If you suspect your child may have cystic fibrosis, you should contact your doctor immediately...
The Profile for Cystic Fibrosis 0

The Profile for Cystic Fibrosis

The Profile for Cystic Fibrosis Cystic fibrosis is an inherited disease that occurs when both parents carry the mutant CF gene. It is incurable but new advances are being found each year in finding new methods of treatments...
Coping Skills After The Diagnosis 0

Coping Skills After The Diagnosis

Coping Skills After The Diagnosis The diagnosis of cystic fibrosis can be devastating for families and the patient. Everyone will go through a range of emotions and each one on their own timetable! Some of those emotions include anger, fear, and guilt...
The History of Cystic Fibrosis 0

The History of Cystic Fibrosis

The History of Cystic Fibrosis Cystic fibrosis was a disease that has been around since the Middle Ages. Many infants with “salty” skin often died in infancy or young...
Cystic Fibrosis—Life Threatening and Incurable 0

Cystic Fibrosis—Life Threatening and Incurable

Cystic Fibrosis—Life Threatening and Incurable Cystic fibrosis has been around since medieval times. Infants in the middle ages who had “salty” skin were considered bewitched because they normally died during infancy...
The Affect of Cystic Fibrosis on Children 0

The Affect of Cystic Fibrosis on Children

The Affect of Cystic Fibrosis on Children Over 4,000 children are born with Cystic Fibrosis in the United States each year. They get the disease when both of their parents have the Delta F508 gene...
Symptoms of Cystic Fibrosis 0

Symptoms of Cystic Fibrosis

Symptoms of Cystic Fibrosis Symptoms of cystic fibrosis will normally show in children by the age of three. Adults can be diagnosed with cystic fibrosis but that is usually rare...
Cystic Fibrosis and Alternative Medicine 0

Cystic Fibrosis and Alternative Medicine

Cystic Fibrosis and Alternative Medicine Alternative medicine may give hope to some cystic fibrosis patients. Although there is no known cure for this disease, there are a few simple steps to make the quality of life better for a cystic fibrosis patient...
Standard Tests for Diagnosing Cystic Fibrosis 0

Standard Tests for Diagnosing Cystic Fibrosis

Standard Tests for Diagnosing Cystic Fibrosis The standard and most common test for cystic fibrosis is the sweat test. Mothers often are performing this test in a maternal way when they kiss their infant and realize they have a salty taste...
Cystic Fibrosis and Pregnancy 0

Cystic Fibrosis and Pregnancy

Cystic Fibrosis and Pregnancy Scientists and researchers recently released a study showing a decline in birthrates of babies with cystic fibrosis since genetic testing became available. The general public has more knowledge and understanding of the disease that was a mystery for so long...
Signs and Symptoms of Cystic Fibrosis 0

Signs and Symptoms of Cystic Fibrosis

Signs and Symptoms of Cystic Fibrosis Cystic fibrosis is a disorder that causes severe lung damage and digestive problems that could result in malnutrition. The disease is inherited when both parents carry a recessive mutant gene...
Defining Cystic Fibrosis – Sherri Smith 0

Defining Cystic Fibrosis – Sherri Smith

Defining Cystic Fibrosis - Sherri Smith Cystic Fibrosis affects more than 30,000 children and young adults in the United States. It affects children by interrupting the work of the epithelial cells...
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